WOW… its been ages since I have written, but we have had alot of stuff going on here. We have been dealing ( or not dealing) as the case my be, with the multiple diagnosis of our little girl. we hve had alot of ups and downs but we are starting to see the light at the end of the tunnel. We now have a special UV pram and w are getting our car UV tinted in the next few days. We are loking forward ot being mobile. Charlotte is enjoying going for walks though the first one freaked her out. We think she was frightened as she has not been outside the house for weeks. She is coping well now.
Health wise she has not been great. She is dangerously low on iron, ans she has a underactive thyroid. We are off to the drs tomorrow to get some more information on what to do. We are a little scared as there were makrers for other condition in her blood tests and we are awaiting more information. Fingers crossed.
We have received funding for equipement for our little girl and we have purchased her pram, some educational toys. We are also going to get a small airconditioner as the one we have just is not cooling the house cool enough for her, so we need to top up the loungeroom. We will then be putting the rest of the money in an account ot use for medical cost for her. It is a weight off our minds to have this money for this purpose. With trips to Sydney in our future this money will come in handy.
Well I need to go and cook dinner to feed my lot….
Sunny
